• Facebook
  • X
  • LinkedIn
  • Instagram
  • Youtube
  • Tiktokicon
  • Login
info@ecanja.eu      Co-funded by the EU
  • eCAN
    • About us
    • Involved Organisations
    • Brand identity
    • EU Initiatives
  • Our Work
    • WP1 – Coordination
    • WP2 – Communication
    • WP3 – Evaluation
    • WP4 – Sustainability
    • WP5 – Teleconsultation
    • WP6 – Legal, ethical framework and cybersecurity
    • WP7 – Telemonitoring
    • WP8 – Stakeholders Engagement
  • Communication
    • News
    • Press Room
    • Newsletters
    • Agenda
  • Resources
    • For Policymakers
    • For Patients & Caregivers
    • For Healthcare Professionals
    • Scientific Publications
  • Contact us
  • Menu Menu

The EU project eCAN JA proposes key recommendations to integrate telemedicine in cancer care

News
eCAN
Share this entry
  • Share on Facebook
  • Share on X
  • Share on WhatsApp
  • Share on LinkedIn
  • Share by Mail

The European project eCAN Joint Action (JA) has presented a guide of recommendations to integrate telemedicine in European healthcare systems for cancer prevention and care. The presentation has taken place in Brussels last Friday, at the BIP Meeting Center. For two years, the project has explored the role of teleconsultation and telerehabilitation. Its main goal was to identify necessary actions to strengthen the adoption of telemedicine for cancer prevention and care and the use of digital tools for reducing cancer care inequalities across the EU. 

The Head of the Belgian Cancer Center (Sciensano) and project’s coordinator, Marc Van Den Bulcke, has explained that eCAN was born within the framework of the European Beating Cancer Plan, under the EU4Health programme. “It was actually the covid crisis which indicated the need of these solutions, especially in remote areas”, he has stated. “We were supposed to explore the role of telemedicine and teleconsultation in the cancer field by focusing on quality, users’ needs and expectations. We wanted to help workforce to be prepared and to look whether we could also initiate the development of a modular and interoperable telemedicine solution”.  

The eCAN recommendations 

According to the project conclusions, integrating telemedicine into day-to-day healthcare practices requires action on policy frameworks, IT infrastructures, training and educational resources, and stakeholder engagement and collaboration. Besides that, some other measures must be considered during the course of telemedicine’s implementation and the evaluation process. 

By taking action on the policy framework, eCAN calls decision-makers’ attention to prioritise telemedicine, as well as developing guidelines aligned with General Data Protection Regulation (GDPR). In areas such as stakeholder engagement, they suggest engaging patients in the design and testing of telemedicine services, among other measures. Offering specialised training and resources to healthcare providers and caregivers to assist patients in adopting technology seems also a key point. On the other hand, aligned with the European Parliament priorities on health data management, eCAN remarks the need of ensuring the development of solid IT infrastructures for telemedicine services and the exchange of health data among EU Member States. Along other recommendations, it also considers important to address hospital workload challenges and defining clear metrics and evaluation criteria before and after telemedicine implementation.  

Robbe Saesen, scientist at Sciensano and eCAN participant, has explained that “the extent to which these recommendations have to be implemented in European countries depends on the situation in each country”. For this reason, eCAN has addressed policymakers from across Europe to discuss the relevance of these recommendations and potential actions that can be taken to implement them. In the long run, applying these recommendations may help to overcome the challenges and leverage facilitators associated with the implementation of telemedicine in cancer care, and to ensure equitable and efficient healthcare delivery. 

Change projections on diagnosed cancer cases 

Participants highlight the importance of boosting telemedicine practices, especially in a context in which health data and computer-based analytical tools are more interconnected than ever thanks to digitalisation. Taking action in this regard seems necessary to change current projections on diagnosed cancer cases, which are expected to increase by a fourth by 2035. Besides that, epidemic situations, such as covid-19, have pointed out how crucial the usage of telemedicine and teleconsultation is becoming. Another concern is that, across Europe, the possibility of receiving a timely cancer diagnosis and the chance of survival differs considerably because of inequalities in preventive policies, access to state-of-the art diagnostics, treatments and experienced care. 

This paradigm and the conclusions achieved highlight the need to keep working on telemedicine integration into healthcare systems for cancer prevention and care. The exploratory work done in these two years would continue in the next Joint Action, the eCAN+, which will wider its extent and scope by involving more countries and new challenges to be addressed, such as enhancing digital collaboration within and between cancer centres.

https://ecanja.eu/wp-content/uploads/2024/12/Template-fotos-noticias-web-2.png 317 835 eCAN https://ecanja.eu/wp-content/uploads/2023/01/logo_eCAN_shortbanner.svg eCAN2024-12-02 09:28:572024-12-02 09:58:13The EU project eCAN JA proposes key recommendations to integrate telemedicine in cancer care

eCAN pilots results point to digital health as an adequate support for cancer patients

News
Cancer pilots results
Share this entry
  • Share on Facebook
  • Share on X
  • Share on WhatsApp
  • Share on LinkedIn
  • Share by Mail

Telerehabilitation and telepsychology appear to be an appropriate support for cancer care, according to the results of pilot projects conducted with breast, head and neck, and advanced cancer patients. The results show an improvement in patient-reported outcomes such as quality of life, pain and distress when telehealth interventions are used. Challenges such as various ethical approvals, technical issues and patient compliance were addressed with mitigation strategies to ensure feasibility and acceptability.

All the details are available in the WP5 deliverable “Final clinical Study Analysis”, a report that evaluates the role of telemedicine in cancer care through three pilot studies involving 251 patients across the European Union.

The breast cancer pilot included 57 patients in the control group and 50 in the intervention group. The authors observed a significant difference in the results at the end of the study, with patients in the intervention group reporting a better quality of life than those in the control group. Based on these results, telemedicine seems to have had a positive impact on breast cancer patients.

The advanced cancer pilot included 54 patients in the control group and 50 in the intervention group. The results showed a significant difference in distress between patients who participated in online psychological consultations and those who attended face-to-face sessions. Although telemedicine seems to reduce the distress of advanced cancer patients, it does not appear to show equal effect on their quality of life.

The authors do not report the results of the pilot for head and neck cancer patients, as these cannot be considered significant due to the small sample size.

According to this research, tele-rehabilitation and virtual psychological sessions seem to be an adequate support for cancer patients, particularly for those living far from the place of treatment and for those who are advised not to go to the hospital for health reasons. Also, the use of a dedicated app can be a useful tool to improve patient compliance in reporting outcomes, state the authors.

Pilots’ methodology

The results of these pilots contribute to eCAN’s mission to support EU Member States in implementing telemonitoring and teleconsultation in national healthcare systems to reduce inequalities in cancer care across the European Union.

During the pilots, patients in the intervention group participated in remote consultations and we tracked their status for eight weeks using telemonitoring systems to collect patient-reported outcomes. We developed a dedicated app to collect this data, and a small group of patients also explored the use of smartwatches to report on a weekly basis on various health-related metrics such as pain, physical status, sleep quality, distress, heart rate, etc.

In contrast, patients in the control group continued with their regular face-to-face consultations and did not have access to any of these digital health tools. This approach has allowed to explore and evaluate the impact of virtual cancer care compared to traditional face-to-face care.

https://ecanja.eu/wp-content/uploads/2024/12/Template-fotos-noticias-web.png 317 835 eCAN https://ecanja.eu/wp-content/uploads/2023/01/logo_eCAN_shortbanner.svg eCAN2024-11-28 12:11:302024-12-10 10:52:25eCAN pilots results point to digital health as an adequate support for cancer patients

Artemis Komatina, psychologist involved in the pilots: “In order to promote technology within healthcare settings, we need to start with our healthcare professionals”.

News
Share this entry
  • Share on Facebook
  • Share on X
  • Share on WhatsApp
  • Share on LinkedIn
  • Share by Mail

eCAN Bites is a podcast that gathers interviews with some of the healthcare professionals that have participated in the eCAN pilots. In four episodes we will try to dive into their experiences. How was to be involved in this study as a healthcare professional? What’s the patients’ feedback? How could this project change the current healthcare ecosystem in Europe?

In the fourth and last episode of this podcast, we’ve talked to four psychologists, one physiotherapist and one primary investigator. They have shared with us their reflection on these clinical trials. After all the work that has been done, now it is time to collect their feedback to start thinking about future actions. Their experience not only guide our next steps, but also help us to understand the main challenges and where our efforts are most needed. In this occasion, we’ve interviewed Vasiliki Holeva, from Greece; Sofia Adão da Fonseca and Magda Oliveira, from Portugal; Orsolya Hovart, from Hungary; and Artemis Komatina and Constantina Palala, from Cyprus. We invite you to press play and listen to their reflections on their whole experiences.

PODCAST TRANSCRIPTION

Elisa Piñón (00:05) 

Hello and welcome to eCAN bites. My name is Elisa Piñón. I am the Communications Officer for eCAN Joint Action and your host for today’s episode, the last of this series. 

We’d like to start the last episode of the eCAN bites by thanking all the health care professionals who took their time to talk to us and bringing the eCAN experience closer to our listeners.  

Today we will explore the take-home messages these healthcare professionals highlight from their participation in this transnational project. For this last episode we’ve invited six healthcare professionals from across Europe. We have the pleasure to talk to Vasiliki Holeva, from Papageorgiou Hospital of Thessaloniki in Greece; Sofia Adão da Fonseca and Magda Oliveira, from the Portuguese Institute of Oncology in Porto, Portugal; Orsolya Hovart from the National Institute of Oncology in Hungary; and Artemis Komatina and Konstantina Palala from the Cyprus Association of Cancer Patients and Friends. 

Thank you for being here today and let’s get started. 

It’s so nice to have you here, Vasiliki. You are a clinical psychologist and worked with breast cancer patients, right? How do you value the experience as whole, taking into account the Greek context?   

Vasiliki Holeva (01:30) 

Right. It was definitely a useful experience for us, because we are under a new technological world, which was very easy to adapt and we felt that we managed to help patients that we couldn’t help otherwise, due to their condition and the severity of their illness. So my experience is positive, definitely positive. 

Elisa Piñón (02:06) 

The European Union is so diverse that we need to make sure all countries have equal opportunities to access these services. Does something similar happen in other contexts? Let’s ask our Portuguese colleagues. Sofia, Madga, you are physiotherapist and psychologist respectively in IPO Porto. What’s your opinion on the eCAN pilots? 

Sofia Adão da Fonseca (02:27) 

I think it is a really good and interesting strategy for following the patients that can’t come in person. I think this experience was really useful for us, as clinical team, as for the patients, as they showed us how they were doing with the treatment. 

Elisa Piñón (02:57) 

And yours, Magda? 

Magda Oliveira (02:59) 

I think when we look at it from a broader perspective, looking to the pluses and the minus, I think the balance it is very positive. It was a positive experience for me. I was challenged with something that need the development of your skills. And it was very, very positive that the patients were included in these pilots. We adopted a lot of games and are very happy with their participation from the start until the end. So, I think it was a good opportunity for all of us, the starting point for thinking of reflections and perspectives that these tools can bring to all of us. Thank you for the opportunity.  

Elisa Piñón (03:57) 

The pleasure is ours, Magda. None of that could have been possible without your commitment. I’m sure the Hungarian colleagues put the same dedication in the project. You, Orsolya, were the primary investigator from your centre in this project. How do you evaluate this experience? 

Orsolya Hovart (04:14) 

The eCAN Project was a really good chance to convince the patients and the healthcare professionals that the e-tools can improve the treatment and the rehabilitation of cancer patients, and the I’m quite sure that this will be the way for the future, and we both have to accept it and use it widely. 

Elisa Piñón (04:41) 

Thank you very much, Orsolya, lastly I’d like to get your impressions Artemis and Constantina. You both work in the Cyprus Association of Cancer Patients and Friends. What are your main highlights after participating in this project?   

Artemis Komatina (04:57) 

I think it is important to really find ways to inform and educate and support healthcare professionals. I know in some countries technology is widely used, but in Cyprus it is a lot more limited. And I think in order to promote technology within the healthcare settings, we really need to start with our healthcare professionals. It’s not a normal part of our everyday practise, so it’s something that we kind of need to get familiar with and get to know well and we need to appreciate its benefits in order to help our patients embrace the change and the benefits of technology. 

Constantina Palala (05:44) 

Yeah. Well, basically our approach will affect the willingness of the patients to incorporate like technology in their lives. So we need training. 

Elisa Piñón (06:00) 

We are taking notes, Constantina. While doing these interviews, I’ve heard that more than once, so we definitely have some work to do in that sense.  

Thank you so much for joining me in today’s episode. This was the last of our series, I hope you enjoyed the four episodes that are available on our website and hopefully you better understand the intricacies of this exciting project after listening to eCAN bites. We definitely do it. We’ll keep you posted on our very last news. 


Logo EUCo-funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or HaDEA.                                                                       Neither  the European Union nor the granting authority can be held responsible for them.

https://ecanja.eu/wp-content/uploads/2024/11/Ep4-portada_EUdisclaimer.png 320 835 eCAN https://ecanja.eu/wp-content/uploads/2023/01/logo_eCAN_shortbanner.svg eCAN2024-11-21 08:56:332024-11-21 08:56:37Artemis Komatina, psychologist involved in the pilots: “In order to promote technology within healthcare settings, we need to start with our healthcare professionals”.

Sofia Adão, physiotherapist involved in the pilots: “It’s a good strategy, not so easy to apply because of time-consuming aspects”

News
Share this entry
  • Share on Facebook
  • Share on X
  • Share on WhatsApp
  • Share on LinkedIn
  • Share by Mail

eCAN Bites is a podcast that gathers interviews with some of the healthcare professionals that have participated in the eCAN pilots. In four episodes we will try to dive into their experiences. How was to be involved in this study as a healthcare professional? What’s the patients’ feedback? How could this project change the current healthcare ecosystem in Europe?

In this third episode, we’ve talk to the healthcare professionals involved about the chances of applying the eCAN experience to the European healthcare ecosystems. What would we need to implement the telemedicine tools that we tested in regional hospitals or cancer centres? We’ve interviewed Erika Korobeinikova, radiation oncologist from the Hospital of Lithuanian University of Health Sciences; Sofia Adão da Fonseca and Magda Oliveira, from the Portuguese Institute of Oncology, based in Porto; and Nektaria Chrysanthou from the Bank of Cyprus Oncology Center.

They highlight some of the features that must be taken into account to translate these clinical trials into daily common practice within hospitals. We invite you to press play and listen to their reflection on this topic.

PODCAST TRANSCRIPTION

Elisa Piñón (00:05) 

Hello and welcome to eCAN bites. My name is Elisa Piñón. I am a Communications Officer for the eCAN Joint Action and your host for today’s episode.  

This is third episode of our podcast, eCAN Bites. We have previously talked about the pilots’ benefits and difficulties, and we’ve also asked the professionals involved in the project about the feedback they got from the patients that joined the study. Today, we’d like to dive a little bit into the application these pilots could have into national healthcare ecosystems. In other words, how could the eCAN experience be applied to European healthcare systems in the light of the integration of digital care?  

To answer this question, we’ve invited four healthcare professionals that have conducted this study. We have the pleasure to talk to Erika Korobeinikova, from Lithuania; Sofia Adão da Fonseca and Magda Oliveira, from Portugal; and Nektaria Chrysanthou from Cyprus. Thank you for being with us today.   

I would like to start by introducing you, Erika. First of all, hello and welcome.   

Eirka Korobeinikova (01:10) 

Hello. 

Elisa Piñón (01:11) 

You are radiation oncologist at the Hospital of Lithuanian University of Health Sciences. As a person that has been involved in this project, how do you think this study could impact your daily practice in the hospital?   

Erika Korobeinikova (01:25) 

I think it’s our first experience with telerehabilitation, as we were only involved in the telerehabilitation part of the project. It has showed us that it is really possible and it’s really good way to (…) reduce the workflow in the clinics and involve patients who maybe live far from the hospital and cannot come to rehabilitation. Even for those for whom this physical rehabilitation is not compensated, the online suggestions for the patient were really working well, so maybe they can help them themselves. We can give them advice, and that’s how it might work. All this project is a huge benefit for the patient, and I think that’s how we can can change the future: how we work with the patients after their surgery, and maybe it could also evolve to other cancers as well. 

Elisa Piñón (02:41) 

Yes, showing that telemedicine practices are actually a possibility and seeing the potential benefit for cancer patients is definitely a great first step. Thanks, Erika. Let’s get more inputs. Sofia, you are physiotherapist at the Portuguese Insitute of Oncology. Your work is very physical and manual, do you think telemedicine, as we tested it, could work in cancer patients in Portugal or would there be unfeasible issues?   

Sofia Adão da Fonseca (03:12) 

I think that the main difficulty is time, frequency of the consultation (sessions). We have really tight schedules with a lot of work, and so sometimes we can’t do so many teleconsultations so frequently. We are a centre that has patients who live far from the centre, this would be a really nice option to follow and to make some follow-up operations to whom lives far from Porto.  So I think it’s a good strategy, not so easy to apply because of the time consuming aspect. 

Elisa Piñón (04:06) 

That’s a very good point. We need to make it feasible and efficient. We also have here Nektaria, you are a research fellow at the Bank of Cyprus Oncology Center and you participated in pilot 1A, with breast cancer patients.  From your experience, what’s the  most important aspect to consider when it comes to implementing telemedicine tools in European healthcare systems?   

Nektaria Chrysanthou (04:31) 

Basically we need to consider implementing this kind of technology we have in everyday clinical practise, and of course in order to be able to do that, we have to train healthcare professionals on how to talk to their patients through telemedicine, and explain its benefits, and how it can save time from both of them and the patient in the future. 

Elisa Piñón (05:03) 

Thank you for highlighting the importance of the training programmes, Nektaria. In fact, at eCAN we have worked on a free trainning programme you can access to improve your digital skills as a healthcare professional. For all our listeners that are interested, you can find it on our website ecanja.eu. Well, let’s continue with our round of interviews. Last, but not least, I’d like to talk to Magda, clinical psychologist at Portuguese Institute of Oncology in Porto.  

Magda, from your perspective, how could something like eCAN be implemented in the Portuguese healthcare ecosystem? 

Magda Oliveira (05:39) 

In the macro view, I think it’s very important because with pandemics I think we became more aware of the ehealth and telemedicine issues. I believe that when we work with patients that are very delicate, it’s obviously a good tool and a good strategy. From the micro perspective, I believe that the work that we have been doing in this project and mostly with the contribution of Dr. Otilia, I believe that in the department there is increasing awareness about importance of bringing governments (closer) to our institution and thinking of a broader approach to improve the quality of the healthcare provided to our patients and families. 

Elisa Piñón (06:53) 

So, it is also a matter of awareness within healthcare institutions, right? We need to make sure that the benefits of telemedicine are known by those that can actually integrate it in the healthcare system. Thank you so much for sharing your experience with us today, Magda, and also the rest of you. We leave it here and there is only one more episode to go, but we encourage you to stay tuned and take a look at our previous episodes as well. You will find more information about our pilots and how they contribute to strenghten the ehealth ecosystem in the European Union. See you soon.


Logo EUCo-funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or HaDEA.                                                                       Neither  the European Union nor the granting authority can be held responsible for them.

https://ecanja.eu/wp-content/uploads/2024/10/Ep3-portada_EUdisclaimer.png 320 835 eCAN https://ecanja.eu/wp-content/uploads/2023/01/logo_eCAN_shortbanner.svg eCAN2024-11-12 09:00:342024-11-12 09:14:51Sofia Adão, physiotherapist involved in the pilots: “It’s a good strategy, not so easy to apply because of time-consuming aspects”

Constantina Palala, psychologist: “The feedback was positive, and some sessions were actually very good through the online platform”

News
Share this entry
  • Share on Facebook
  • Share on X
  • Share on WhatsApp
  • Share on LinkedIn
  • Share by Mail

eCAN Bites is a podcast that gathers interviews with some of the healthcare professionals that have participated in the eCAN pilots. In four episodes we will try to dive into their experiences. How was to be involved in this study as a healthcare professional? What’s the patients’ feedback? How could this project change the current healthcare ecosystem in Europe?

In this second episode, we’ve interviewed one of the primary investigators of this research, one physiotherapist that worked with breast and head and neck cancer patients, and two clinical psychologists that offered online therapy to cancer patients. We want to share the patients’ experiences through their voices and these four professionals have helped us to build a clearer picture on what patients needed and expected. We invite you to press play and listen to their experiences, you might be surprised by the importance of the very small details when doing a transnational study like this one.

PODCAST TRANSCRIPTION:

Elisa Piñón (00:06)

Hello and welcome to eCAN Bites. My name is Elisa Piñón and I’m a communications officer for the eCAN Joint Action and your host for today’s episode. For this second episode, we are going to explore some of the feedback that patients have given to the healthcare professionals who followed and monitored them during the eCAN pilots. For this purpose, I have with me today Meghan Carter, from Ireland; Orsolya Hovart, from Hungary; Sandra Birbilaitė, from Lithuania and Constantina Palala, from Cyprus. Thank you for being here today.   

Let’s start with you, Meghan. Could you tell us a bit about yourself and your role in this project? 

Meghan Carter (00:51)

Sure. So my name is Meghan Carter. I’m a senior physiotherapist in radiation oncology, and I’m based in a hospital in Galway in the West Coast of Ireland. 

Elisa Piñón (01:03)

So, within this project you were in charge of working with breast and head and neck cancer patients, right? I guess they all have different points of view, but is there a common experience that you could share with us today? 

Meghan Carter (01:15)

They were very relieved that they were getting some sort of follow up and that somebody was keeping an eye on them because. Obviously they have their medical follow-ups and they’re, you know, due for scans or some of them were due to start radiotherapy or you know different things that were going to be potentially in a few weeks or months, so it was good for them to have a clinician check in every week just to monitor, see if they’re OK. They could ask us questions that weren’t always related to physiotherapy, but just in general, medical questions that we might be able to guide them to the right person, so feedback was that it was good to have somebody there to chat to and to obviously keep an eye on symptoms like lymphedema or if they have any other musculoskeletal problems and then the only kind of negative feedback really was patients that were just disappointed from being in the control group. 

Elisa Piñón (02:11) 

Yes, as a patient, it is hard not to have any expectations when you get involved in this type of study, I guess. But I hope they know how useful their role is as well. Thank you for your insights, Meghan. 

Meghan Carter (02:23)

Thank you. 

Elisa Piñón (02:24)

We go from Ireland to Hungary, we have the pleasure of talking today to Orsolya Hovart. You work at the National Institute of Oncology in Hungary and were primary investigator in the eCAN pilots. So we can say you were involved in the whole process, from patients’ enrolment until the end. Did you have the chance to get to know the patients’ experience? Would you say they were happy with this process? 

Orsolya Hovart (02:49)

They were really happy to get into the intervention (group), because it was much more easier. We had patients from all over the country, so there are quite a lot of patients who have to travel a lot and to get to the Institute, and also we have some patients who have little children and parents who care about them. So it was really good for them that they got into the intervention (group). And for the psychology, they were really happy that they get psychological treatment for two months because psychologists have quite a lot of patients and usually they meet with them just five times, and not for two months long. Also they get more treatment, so they were also very happy. 

Elisa Piñón (03:51)

Thank you Orsolya. Your insights offer us a glimpse of the effects patients perceived while participating in the intervention group. And now I would like to dive a bit into the feedback patients provided with regard to psychological support. For that Sandra Birbilaitė is also with us today. She is clinical psychologist and psychotherapist at the National Cancer Institute of Lithuania. So, in the first episode we had here Marija Turlinskiene, she is your colleague, and she gave us some food for thought in terms of the eCAN pilots. Now it is your turn, Sandra. Do you consider patients were satisfied with their participation? Should we improve something for the next time according to their feedback?   

Sandra Birbilaitė (04:33)

Yes, patients like the idea of participating in this. But we already talked with Maria about app improvements. We talked yesterday, and it can be that patients in the app can receive not only questionnaires but maybe some self-help materials, about depression, about anxiety, medicine, something like this. And if it’s related to rehabilitation (…), maybe some exercises can be involved in the app, so they can really do what doctors… 

Elisa Piñón (05:26)

Yes, this app enables them to do what’s recommended by the doctor at any time during the rehabilitation process, so it could change according to their needs, which is helpful for the patient. Thanks a lot, Sandra, for your insights. Lastly, we would like to talk to Constantina Palala today. She is psychologist at the Cyprus Association of Cancer Patients and Friends, and you have had several online sessions with patients. Did they express how they felt during this whole process? 

Constantina Palala (05:54)

I think that the fact that their engagement was monitored by us, meaning the measurements from the watch and the questionnaires make them feel safer, like that someone is looking after them. The feedback was positive, and I can say that some of the sessions were actually very good through the online platform. I think they felt safer and some of them felt more comfortable expressing themselves even more. 

Elisa Piñón (06:36)

Yes, some people are sometimes reluctant to adopt digital tools when it comes to therapy, but it works for others, and I’m happy to hear that your patients were able to express themselves freely. Thank you so much for your participation today. Thank you all. Listening to patients’ experiences through your voices has been so insightful and we have taken note of some of the pending tasks that we need to accomplish to satisfy patients because we know that they are always first. Have a good day and see you in our next episode on implementing eCAN experiences in daily life scenarios. See you soon.


Logo EUCo-funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or HaDEA.                                                                       Neither  the European Union nor the granting authority can be held responsible for them.

https://ecanja.eu/wp-content/uploads/2024/10/Ep2-portada_EUdisclaimer.png 320 835 eCAN https://ecanja.eu/wp-content/uploads/2023/01/logo_eCAN_shortbanner.svg eCAN2024-10-29 08:53:322024-12-05 15:17:00Constantina Palala, psychologist: “The feedback was positive, and some sessions were actually very good through the online platform”

Cvetka Grašič, healthcare professional involved in the pilots: “We had difficulties with the recruitment of patients, but then we found an efficient strategy for enrolment”

News
Share this entry
  • Share on Facebook
  • Share on X
  • Share on WhatsApp
  • Share on LinkedIn
  • Share by Mail

eCAN Bites is a podcast that gathers interviews with some of the healthcare professionals that have participated in the eCAN pilots. In four episodes we will try to dive into their experiences. How was to be involved in this study as a healthcare professional? What’s the patients’ feedback? How could this project change the current healthcare ecosystem in Europe?

In this first episode, we’ve interviewed three clinical phycologists and one medical oncologist from 4 different countries. They shed light on the main benefits and difficulties they encountered while setting and conducting the study. Some of them have participated in pilot 1a, focused on breast cancer patients. Some others were involved in pilot 1b, addressing head and neck cancer patients, and other professionals took part in pilot 2, working with advanced cancer patients.

We invite you to press play and listen to their experiences, you might be surprised by the importance of the very small details when doing a transnational study like this one.

PODCAST TRANSCRIPTION:

Elisa Piñón (00:00) 

Hello and welcome to eCAN Bites. My name is Elisa Piñón, and I’m a communications officer for the eCAN Joint Action and your host for today’s episode. In this first episode, we are going to listen to the benefits and also some of the difficulties that some healthcare professionals have experienced participating in the eCAN pilots. Listen to their stories will help us to identify how we can improve our action in the future. But this is not only useful for our joint action, but also for other healthcare professionals and projects that seek to change the current healthcare ecosystem. In total, this project has involved 10 countries and 16 institutions, and today we have here the professionals from four of them. We have the pleasure to talk to Marija Turlinskiene, clinical psychologist at the Vilnus University Hospital Santaros Klinikos in Lithuania; Panagiota Karamouzi, clinical psychologist at Papageorgiou Hospital in Thessaloniki, Greece. Then we also have here Cvetka Grašič, medical oncologist from the Institute of Oncology of Ljubliana, Slovenia. And lastly, from Cyprus, Artemis Komatina, psychologist at the Cyprus Association of Cancer Patients and Friends is also joining today’s episode. So let’s get started. I would like to start with you, Marija. How was your experience participating in this project? 

Marija Turlinskiene (01:32) 

We have a very good experience in this project because it had extended the possibility of psychological help for patients with advanced cancer who live far away from our hospital and who found it difficult to come every week for a face-to-face consultation with psychologist. So, online counselling was available and important for patients who do not have the physical strength to come in and who do not have specialised psycho-oncological help in their place of residence. And also, I think the good experience in this eCAN project was the clear and prompt communication with coordinators, and the clear educational material and the quick resolution of problems. And there was very helpful and appreciated. This is our experience. Our patients who participated in the intervention group shared also very good experiences with the process and benefits from online psychological help. They highlighted the meaningful and good opportunity to participate in the study, because they hope that the study data will be helpful to improve and extend psychosocial care for cancer patients. 

Elisa Piñón (03:26) 

Thank you, Marija. Would you like to add something on the same lines, Panagiota? What’s your experience? 

Panagiota Karamouzi (03:32) 

It’s always nice to be part of the latest developments in your field, as in teleconsultation, and to work on this available group of patients, like cancer patients. 

Elisa Piñón (03:50) 

Now that we know some of the good experiences from the pilots, could you explain to us the difficulties you encountered, Cvetka? 

Cvetka Grašič (03:58) 

We had some difficulties in the beginning with the recruitment of patients, but then we found an efficient strategy for enrolment, and at the end, after some months, the influx of patients was according to our capacities. It was a problem that for a long time there was only an Android app and we could not include patients with iPhone. Some patients had also old (software) versions on their phones, so the app didn’t work very well. For patients, the biggest problem was the font size. Probably the programmers did not consider that cancer patients are elderly and need larger text fonts on their screen. Because of that, some patients couldn’t press the button to send the questionnaires to the platform. 

Elisa Piñón (05:08) 

We are seeing the importance of creating user friendly technologies and the big impact even designs and layouts may also have in telemedicine research. Thank you for your reflection, Cvetka. Let’s listen to the last input that Artemis can tell us today. What were the main difficulties you encounter, Artemis, in Cyprus? 

Artemis Komatina (05:30) 

I think for us in Cyprus, at least at PASYKAF, our patients have fairly easy access to care. They have access to psychological support and to various services that we offer at PASYKAF. And for patients with advanced cancer who have maybe mobility issues, we actually do home care visits. Something that we struggled with was getting patients to actually agree to try it, to take part in the study, because they actually had access to us. A lot of our patients preferred to see us in person rather than enrolling in the study because they weren’t that interested in therapy via the platform. I think that was one of our main challenges as PASYKAF, because we informed a lot of our patients. I think we had over 170 patients that we informed of the study. There was a lot of reluctance to actually take part. There were some other struggles in terms of the platform. Initially, it was, I think, with EduMeet, with the online therapy sessions. The rooms were supposed to be private, but there were some people in the rooms, especially in the initial parts of us starting the online therapy sessions. But over time, I think the problems got sorted out. I had some troubles with the application, with completing the distress thermometer, specifically. There were some struggles, which on our part, it is a little bit more time-consuming. On the one hand, seeing a patient online was helpful because we could save some time, but on the other hand, supporting the technical side, in some cases, I think it was time consuming. 

Elisa Piñón (07:30) 

We’ve definitely taken note of all your inputs, and we hope they are also useful for all the scientific community that want to explore telemedicine options in the EU. Thank you so much for sharing your experience with us today. We’ll leave it here, but you will have more information about our pilots and how they contribute to strengthening the eHealth ecosystem in the European Union very soon. 


Logo EUCo-funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or HaDEA.                                                                       Neither  the European Union nor the granting authority can be held responsible for them.

https://ecanja.eu/wp-content/uploads/2024/10/Ep1-portada_EUdisclaimer.png 320 835 eCAN https://ecanja.eu/wp-content/uploads/2023/01/logo_eCAN_shortbanner.svg eCAN2024-10-15 11:00:372024-11-06 12:24:03Cvetka Grašič, healthcare professional involved in the pilots: “We had difficulties with the recruitment of patients, but then we found an efficient strategy for enrolment”

World Head and Neck Cancer Day: Dale Bates’ story

News
Share this entry
  • Share on Facebook
  • Share on X
  • Share on WhatsApp
  • Share on LinkedIn
  • Share by Mail

Do you know how head and neck cancer ribbon looks like? It is likely that most people do not, and it does not matter. However, patients behind it do it. Dale Bates is one of the patients affected by this type of cancer. He lives in Seville (Spain) and today we bring you his testimony dealing with head and neck cancer.  

Dale’s case is special because he invited us to get to know a part of his life by participating in one of eCAN pilot projects. He was treated at Hospital Virgen Macarena (Seville, Spain) and he took part in the intervention group of our pilot 1b (which dealt with head and neck cancer patients). Coinciding with World Head and Neck Cancer Day, we wanted to bring his testimony and offer a few glimpses of this type of cancer, that is not as known as other malignant tumours, but it affected over 100.000 people in the EU in 2022.    

Head and neck cancer mainly comprehends those inside the mouth, throat and voice box. Although less common, those in the salivary glands, sinuses or muscles and nerves in the head and neck are also included in this category.  

Head & Neck cancer: an overview 

There are risk factors that increase the chances of suffering from this illness, such as tobacco use and exposure to tobacco smoke; drinking alcohol or the Human Papilloma Virus (HPV). According to the Mouth Cancer Foundation, this last one could overtake tobacco and alcohol as the main risk factor within the next decade due to high-risk sexual behaviour. 

Depending on where in the head and neck the cancer started the symptoms vary. However, among the most common there are: ulcers or white or red patches anywhere in the mouth that do not heal within 3 weeks; a lump or swelling anywhere in the mouth, jaw or neck that persists for more than 3 weeks; difficulty in swallowing, chewing or moving the jaw or tongue; numbness of tongue or other area of the mouth; a feeling that something is caught in the throat; a chronic sore throat or hoarseness that persists more than 6 weeks or unexplained loosening of teeth.  

The European Cancer Information System (ECIS) estimates 106.511 new head and neck cancer cases were diagnosed in 2022 within the EU member states, Iceland, Liechtenstein, Norway and Switzerland. Compared to other cancers, this number does not rank among the most frequently diagnosed cancers in the continent. In this sense, ECIS estimates that breast (390.675), colorectum (367.409) and prostate (343.860) cancers had the highest incidence in this part of the world the same year. 

Why is it suitable for the eCAN pilot projects?  

Despite showing lower incidence than other types of cancer, head and neck malignant tumours feature specific qualities that make this cancer suitable for taking part in the eCAN pilot projects. Head and neck cancer patients often experience functional impairment due to the tumour and its treatments, including difficulty swallowing, speaking, breathing, pain and cancer-related fatigue. To tackle side effects, rehabilitation is recognised as an important aspect of care for patients suffering from this type of cancer. At the same time, several clinical trials have shown the beneficial effects of physical exercise during and/or after cancer treatment. 

For all these reasons, eCAN chose head and neck cancer patients to take part in the pilot projects conducted during the last months. The aim of this study was to explore how telemonitoring and teleconsultation could improve physical rehabilitation processes of cancer patients.  

References:

European Cancer Information System

MacMillan Cancer Support. Signs and Symptoms of head and neck cancers. URL: https://www.macmillan.org.uk/cancer-information-and-support/head-and-neck-cancer/signs-and-symptoms-of-head-and-neck-cancer

Mouth Cancer Foundation. Self Check. URL: https://www.mouthcancerfoundation.org/wp-content/uploads/2020/10/mouth-cancer-self-check-croped.pdf


Logo EUCo-funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or HaDEA.                                                                       Neither  the European Union nor the granting authority can be held responsible for them.

https://ecanja.eu/wp-content/uploads/2024/07/Template-imatges-agenda-10.png 280 740 eCAN https://ecanja.eu/wp-content/uploads/2023/01/logo_eCAN_shortbanner.svg eCAN2024-07-24 09:29:542024-10-31 13:13:26World Head and Neck Cancer Day: Dale Bates’ story

Effective communication, training and support: key elements for the smooth adoption of telemedicine

News
Focus group with patients, HCPs, and patient assistant agents about telemedicine
Share this entry
  • Share on Facebook
  • Share on X
  • Share on WhatsApp
  • Share on LinkedIn
  • Share by Mail

As a Joint Action aimed at reducing inequalities in cancer prevention and care, end-user perspectives and reflections are central to eCAN. The INAB|CERTH organisation has undertaken several actions under Work Package 8 to actively involve potential end-users and gain a comprehensive understanding of their perspectives on eHealth services. This involvement has led to the organisation of three focus groups under the task 8.2, Participatory Design, in which members of AUTh and 3rd RHA have also participated.

The first focus group (FG) focused on exploring participants’ perceptions of telemedicine and involved thirteen participants (patients, healthcare professionals and patient support workers). In the second, five patients participated to give their opinion on the eCAN mobile application while in the third healthcare professionals commented on the dashboard platform. Taken together, these discussions have provided important input from the wide range of participants involved.

Key points from the eCAN focus groups

The findings from the telehealth focus group highlight many challenges and needs of patients, HCPs and patient supporters. Effective communication, education and support emerge as critical elements for the smooth adoption of telemedicine.

In terms of the technologies that are being developed, the focus group discussions highlight specific requirements and considerations. For the eCAN app, patients expressed satisfaction and provided valuable suggestions, emphasising the importance of usability, improved data visualisation and additional features such as calendar functionality.

On the other hand, discussions on the eCAN dashboard revealed insights from HCPs, emphasising the need for adaptability, immediate technical support and the potential use of the dashboard as a complementary tool to regular care.

The conclusions from the telehealth focus groups are consistent with the technology-focused discussions developed, highlighting the importance of user-friendly design, immediate support and clear demonstration of benefits to both collectives. Bridging these aspects is crucial for the successful integration of telemedicine technologies into healthcare systems.

End-users’ perspectives on telemedicine

The results of the first focus group, focused on telemedicine, are summarised in ten user goals. These include elements such as non-intrusive communication, which is crucial for the interaction between patients and healthcare professionals, and increased motivation for the clinicians as they set the ‘rules’ for such communication.

Usability has been also identified as a relevant step for all software modules, including personalisation capabilities. At the same time, the need for more digital literacy training for patients and professionals and a commitment to short and concise interactions is also emphasised.

Telemedicine is emerging as an alternative for cancer treatment and monitoring, especially in rural areas where patients have limited access to healthcare providers. However, in addition to the use of mobile applications and instant messaging, it is concluded that more mature and less intrusive means of communication (e.g. email, SMS, phone calls, etc.) should also be actively investigated as part of practical telemedicine guidelines and/or pilot studies.

Of course, as these virtual alternatives are developed, the implementation of strict regulations should not be neglected, including the protection of patient data and legal support for healthcare professionals in the event of an error. To ensure trust, there should be transparency about which software tools are suitable for use in the eHealth context, perhaps through well-known certification schemes.

Finally, focusing on specific population groups (e.g. people with limited mobility, minorities with limited access to health services, or younger people who would be more likely to adopt eHealth tools) is crucial to maximise the impact of telemedicine services, reduce their risk of adoption and improve the risk-benefit ratio.

User Goals about telemedicine

User Goals about telemedicine

Insights about the eCAN mobile application and the dashboard

In the other two focus groups, both patients and healthcare professionals have also provided different insights on the eCAN application and the dashboard platform, respectively.

Participants in the first group stressed the need to involve people with different levels of digital literacy in usability studies and to visualise information or data beyond numbers for better interpretation.

On the other hand, patients’ concerns arise when the use of such applications may lead to a deterioration in their health status and exacerbate the impact on their mental health. They also argue that the benefits of using the app should be clear to both patients and healthcare professionals.

In relation to the dashboard, clinicians comment that the platform used for eCAN needs to be resilient to emerging needs in clinical practice and provide immediate technical support during its operation. “Guidance from people who have used the platform in practice would also be helpful”, they have said.

They also point out that the dashboard could be used as a complementary tool to routine care and should be designed to fit the workflow of each healthcare professional, increasing the usefulness of primary data to improve patient care.

Reference

Active Involvement of Potential End Users in Strengthening eHealth for Cancer Prevention and Care (WP8). 2024.


Logo EUCo-funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or HaDEA.                                                                       Neither  the European Union nor the granting authority can be held responsible for them.

https://ecanja.eu/wp-content/uploads/2024/01/PS23-1.png 580 1030 eCAN https://ecanja.eu/wp-content/uploads/2023/01/logo_eCAN_shortbanner.svg eCAN2024-02-06 09:57:562024-10-31 13:13:55Effective communication, training and support: key elements for the smooth adoption of telemedicine

Shortening distances, closing the cancer care gap

News
Share this entry
  • Share on Facebook
  • Share on X
  • Share on WhatsApp
  • Share on LinkedIn
  • Share by Mail

Equity and digital transformation are not always perceived as two sides of the same coin, and although there is an undeniable change in how we behave and interact in this technologically driven World; it is not less true that digital tools offer an incredible range of innovative solutions that can be helpful to reduce inequalities in different fields. 

The transformation healthcare systems are undergoing is intrinsically linked to the incorporation of digital solutions. But there are still some doubts on how this should be done, and the fact that research shows that telemedicine can close healthcare gaps is not enough to fully embrace digitalisation yet.  

In the specific field of cancer, research efforts are focused on consolidating telemedicine as a common practice across Europe, enabling equal access to care. The current scenario reveals that there are gaps in cancer care depending on where the cancer patient lives, whether urban or rural areas; their socio-economic status; the population group they belong to; and how they identify. These are what we know as social determinants of health. 

Inequalities based on our ZIP code

15500 and 06240 are ZIP codes from Fene (north-west Spain) and Sjøholt (west Norwegian coast). Despite being 2320 km apart, these two villages have something in common: both are rural areas where access to cancer care differs from the one in big cities. Mónica Fernández, from Spain, and Nils Petters Sjøholt, from Norway, as cancer survivors, know that for a fact. They are well aware that when cancer touches someone’s life in these territories, distances become problematic, since patients often need to travel long distances to have access to treatment, psychological support and rehabilitation processes.  According to Mónica, “living in a rural area ensures quality of life, but healthcare services close to my place should be better equipped”. She was diagnosed with breast cancer in 2021 and had to travel 40 km to receive radiotherapy for three months, “although there are people from my region that need to drive up to 100 km to get the same treatment”, she adds.  

Nils Petters’ experience has some resemblances. When he was first diagnosed with prostate cancer in 2003, he had to go to Trondheim to get surgery, 260 km from his hometown. “For three years I went to Trondheim for control visits every three months”, he explains. Later on, when he was diagnosed with appendix and skin cancer, he received his treatments a little bit closer, 40 km from Sjøholt. “People living in an urban area have things easier”, he points out. 

The evidence supports his statement. Several studies on cancer care and inequities reveal that cancer patients living in rural areas experience health care disparities and poorer clinical outcomes than their counterparts in urban areas. One useful fact to understand where these inequalities come from is that the “average road distance to essential services is much shorter in urban areas compared to rural areas”, according to EU data, and that may affect almost 1 out of 3 people who live in the countryside in the European Union. For instance, in remote rural areas, the average road distance to the nearest doctor is almost 21.5 km, compared to 3.5 km for people living in cities.

In this sense, Vittorio Castaldo, project manager of the eCAN pilot projects and researcher at the Regina Elena National Cancer Institute in Rome, states that the greater the distance and the travel time, the higher the chances of neglecting patients’ needs. Offering continuous monitoring and psychological support through digital tools “empowers patients and helps us to ensure that patients who live far from medical centres receive equal care than those who live in urban areas”, Castaldo adds. 

A network of support 

Neither Mónica nor Nils Petters received psychological support. In her case, Mónica did not apply for it, although she thought about it. “When I got my diagnosis, I did not react well. I knew I had a lump, because I could touch it, but after tests, they found five lumps. Doctors finally decided that surgery was the best way to tackle it, which was not my preferred option. That was when I felt the World was falling apart”, she explains.  

Thanks to her family and friends’ support, and also because “cancer was never a taboo” for her, she could mentally deal with it. However, she stands for “providing psychological support to everyone who needs it. Cancer processes are not the same for everybody and depending on the sequelae, patients may or may not require it. In my case, I was a young woman who also did not suffer so many corporal changes. When your physical appearance changes a lot, I think it is harder”.  

When Nils Petters recounts this period of his life, he relies on humour. “They [doctors] used to remove small pieces of my body from time to time”, he explains while laughing. For him there is a paradoxical truth: “the key to fully recovery from cancer lies in early detection”. In the case of prostate cancer, active surveillance and the use of the appropriate early detection tools can make a big difference in the possible outcomes of a patient. 

In this case, Nils’ wife was his psychological support, because by that time it was overwhelming to find this kind of help and reliable information in public services. He acknowledges the importance of providing psychological support “to anybody with a cancer diagnosis, especially after treatment”. However, accessing these services is not always easy. “If you need a therapist, you have to go to your regular doctor, and s/he needs to apply for it. When I was a patient, it was not certain that you’d get it, and there was a long waiting list because there was and still is a workforce shortage”, he points out.  

Neither of them has used telemedicine services, but both agree that if they had had the chance to use digital tools, they would have tried them. Mónica notes that “digital tools and communication are paramount, but you also need patients to have some digital literacy”. Nils Petters believes that it would have been much easier for him to have had these tools at that time. 

The role of telemedicine 

In fact, technology transforms the way patients face cancer. “Distances become shorter”, says Efthyvoulos Kyriacou, the head of the Telemonitoring team at eCAN that works at the Cyprus University of Technology (CUT). “A patient might need to talk to his or her physician or psychologist and thanks to telemedicine they do not need to wait three weeks for an appointment. You can have that on a more regular basis through telemedicine services”. Digital tools enable communication, and the opportunity to connect the right clinician to a patient, instead of moving the patient around. “This is especially relevant for countries that have dispersed population in large rural areas”, argues the CUT’s professor. 

At eCAN, research efforts are dedicated to developing mobile apps, web-based interventions or the use of wearables for remote monitoring of pain, anxiety or quality of life. According to Kyriacou, it was after COVID pandemic when “the healthcare community started appreciating the opportunities and usefulness of tele-support and telemonitoring, perhaps also because new generations are digital natives”. 

His perspective coincides with Castaldo’s view. The Italian expert believes that “opening up this new scenario for telemedicine is useful to create a more sustainable and effective healthcare era”. However, “it is relevant to keep in mind that telemedicine is not replacing in-person visits, rather it is a parallel tool useful to overcome some issues related to cost-effectiveness and remote access to care”, he concludes.    

Navigating paths towards equality: where to focus? 

As is often the case, innovation outpaces legislation. Digital tools are available, but the legislation enabling their operation is yet to catch up. However, it appears to be closer than ever. After years of documents bouncing from one institutional desk to another, the prospects of finally reaching an agreement on a European Health Data Space (EHDS) are promising. 

“The EHDS will be the pillar that sustain health data management, and the guide that defines how the General Data Protection Regulation (GDPR) should be handled across the European Union”, Kyriacou explains. The document is grounded in the 2022 proposals of the European Commission, and both the Parliament and the Council have reached their own views on what the final text should contain. The two are now entering negotiations with each other, involving the Commission as well, with the aim of reaching a final agreement that can be enacted into law. 

Integrating digital tools into clinicians and patients’ daily routine is also a matter of persuasion and trust-building process. During the recruitment phase for the eCAN pilot projects, Vittorio Castaldo has seen both negative and positive reactions. Whereas some patients feel reluctant to use it because they “want to have this eye-to-eye conversation with the clinicians, to catch their gestures, etc.”; there are others that “are happy to receive tele-rehabilitation care for breast, and head and neck cancer, and mainly tele-psychological support”. In the trust-building process, Mónica Fernández also highlights the importance of “mastering the art of communication”. “Healthcare professionals need to learn how to better explain what is happening to us and encourage us to get psychological support. They cannot force us, but they can stimulate us”, she points out.  

Digital tools are available, EU regulations are on their way and the ability to convey the right message to the proper actors is a never-ending task. Navigating the journey towards equitable access to healthcare presents ongoing challenges, not only in the realm of cancer care but also in its prevention. What seems to be unmistakably evident in this intricate process is the growing influence of telemedicine, now asserting its position in the core of European healthcare systems, akin to a respected member at the family dining table. 


Logo EUCo-funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or HaDEA.                                                                       Neither  the European Union nor the granting authority can be held responsible for them.

https://ecanja.eu/wp-content/uploads/2024/01/Template-fotos-noticias-web-1.png 317 835 eCAN https://ecanja.eu/wp-content/uploads/2023/01/logo_eCAN_shortbanner.svg eCAN2024-01-30 10:27:162024-10-31 13:14:13Shortening distances, closing the cancer care gap

Dimitra Panteli (OBS): “Understanding how policymakers work is essential to successfully transfer any scientific knowledge”

Interviews, News
Pictures handed
Share this entry
  • Share on Facebook
  • Share on X
  • Share on WhatsApp
  • Share on LinkedIn
  • Share by Mail

INTERVIEW

In the COVID-19 pandemic, we witnessed the constant interaction between the scientific and political worlds. While these realities are interrelated and interdependent, they have not always been able to reach consensus on the best ways to improve our health. In the face of today’s major health challenges (climate change, antimicrobial resistance, rising cancer rates, etc.), it is imperative that both communities work together for addressing the mentioned challenges. 

Precisely one entity that builds bridges between these groups is the European Observatory on Health Systems and Policies (OBS), which has been celebrating its 25th anniversary in 2023. With the elections for the European Parliament around the corner, Dimitra Panteli and Florian Tille, both from OBS, tell us about how they interact with the political sphere when transferring scientific knowledge and what the most innovative trends in health are, among other things. 

Both Panteli and Tille work on evidence-informed health policy and health care, focusing on the Observatory’s work pillar on innovation and its links to Health System Performance Assessment (Panteli) and cancer (Tille).  

The Observatory is celebrating its 25th anniversary this year. What are the general insights of the organisation after so much time supporting and promoting scientific evidence to European health policymakers? 

Dimitra Panteli: The first thing is the vast potential to learn from each other, that’s the whole point of the Observatory. The successes and failures that countries and organisations have had in trying to reform their health systems are lessons that can help others to improve and strengthen theirs.  

Second, health systems are very complex: you may have ideas about how to change them, but whether you succeed depends on many factors, such as a good understanding of the systems or involving all the appropriate actors in the change process.  

And third, health systems do not operate in a vacuum, but in an overall context, with other types of pressures to which they must be resilient. And these pressures are not always foreseeable and may come from outside the system, as we have seen with the COVID-19 pandemic or financial crisis. 

Florian Tille: Context is indeed essential. Even if there is shared learning among systems, countries or regions, ultimately problems or challenges need to be specified and options for solutions tailored to the different places where you are trying to tackle these challenges. This dependency on the context is relevant for the provision of health services, for example. 

What progress has been made in cross-border learning between EU Member States?

Dimitra Panteli: Obviously a lot, otherwise 25 years of Observatory efforts would have gone to waste! The European Union itself, with all its support for collaborative projects such as eCAN, is clearly moving in this direction. Proof of this is that its continued investment in this area has led to the emergence of various networks, initiatives and exchange platforms for boosting knowledge exchange across countries. 

Initiatives such as Transforming Health and Care Systems Partnership (THCS) are trying to strengthen that collaboration by identifying what we need to look at and then promoting a common analysis. 

Florian Tille: And if we talk specifically about cancer, the project ECHoS is also committed to create a European Network of Cancer Mission Hubs (NCMHs) that operates at national, regional and local levels. The Observatory is a key partner in this as we facilitate policy dialogues with the Mission Hubs. 

Does the Observatory have any examples of such networks of its own?

Dimitra Panteli: We count on the Health Systems and Policy Monitor Network (HSPM). The knowledge of our experts is channelled through the HSPM platform, which provides detailed descriptions of health systems and up-to-date information on reforms and changes that are of particular policy relevance. This network, for example, was crucial during the pandemic as it provided information on how countries’ health systems responded to the COVID-19 between 2020 and early 2022 and the inputs to the COVID-19 Health System Response Monitor (HSRM).  

The main gap between scientists and policymakers is the way information is presented and made accessible.

You mentioned earlier that it is important to involve the right actors. How do you get policymakers to listen to the evidence?

Dimitra Panteli: The main gap between scientists and policymakers is the way information is presented and made accessible. We often have good scientific studies on policy measures that are methodologically complicated or present their findings in a format without the “so what?” message that indicates their importance for legislators’ work. Therefore, there is a need for translation from scientific facts to feasible policy actions.   

Really understanding how policymakers work, in terms of their needs and their own ways of operating, is a key ingredient for successfully transferring any insights from science to the political sphere. This is why the Observatory has both short-written formats and face to face formats, such as policy dialogues, to approach policymakers. 

Florian Tille: The information overload we all face implies that we have to be much more specific, concise, and really intentional in our messaging. Not to mention that sometimes it is not the policymaker who works with our messages in the first place, but their closest advisor, so information is likely to pass from person to person. That’s also why the materials we develop have evolved in terms of framing and format: more multimedia, more compact formats, greater social media presence, etc. 

Apart from the collaborative approach, what trends or innovations in healthcare are you currently observing in Europe? 

Dimitra Panteli: I like to divide them into three categories, although they’re interrelated: there is the biomedical or technological innovation and then we also have the organisational innovation, which includes all the different models of care, for example. 

There is a lot going on at the moment, so it’s hard to single things out – but perhaps we can provide some examples. In the first group, we have elements like artificial intelligence (AI) and health applications, with all the challenges that come with them: data privacy, cybersecurity, digital literacy, inequalities, etc. In the second group, we have the efforts done to deliver a closer care to patients without the need of visiting medical centres, such as “hospital at home”.  

Of course, all this innovation means that professionals need to acquire new skills and we need to ensure that we can incorporate the innovations that really benefit patients in a way that is sustainable for the future.   

Florian Tille: We also see innovation in long-term care. We’re just finalising a book on that topic. In one chapter we’ve taken a close look at the trend of more private providers entering this area (of long-term care), and what this implies for service delivery, costs, and most importantly, for the people receiving care, their families, and the workforce.  

In the specific field of cancer, we are looking at the whole continuum of cancer care and research, focusing for example on things like survivorship and the ‘right to be forgotten’ for cancer survivors. 

How is the process of consulting and selecting the scientific evidence and what types of sources do you use?  

Florian Tille: In the Observatory, we do secondary data analysis, which means we consult the scientific knowledge that is in recent literature, and then we try to gather it to do our work. Always from an international or EU perspective. 

And of course, we’re constantly talking to experts in different countries about what’s new, to get additional insights that might not be apparent from the literature at first glance. These networks are also useful when we need to respond quickly to requests from countries on different health topics that emerge all of a sudden. 

Dimitra Panteli: Talking about quick responses, for example, a few years ago one European country asked us for help. They wanted to expand their dental coverage because they realised that their population had significant oral health problems. So, they asked what other countries had done to expand their basket of services in this area. 

Behind these rapid responses, there’s a whole series of observations and country-by-country monitoring that tells us how health systems are evolving and performing and evolving, and then we can provide benchmarks by comparing them.

Policy dialogues, journals, webinars… the Observatory has many tools at its disposal to ensure that its message reaches policymakers. Which ones work best? Is there a need to develop other formats in the future?

Dimitra Panteli: They all have their uses! In general, if you look at the evolution of these formats, you’ll see that we used to do more long studies, and now we tend to use shorter formats like our policy briefs. As a technical advisor you should be able to highlight the key points that are needed in a simple way. To disseminate our written formats, we rely heavily on social media and try to present our points in different ways. 

In the audiovisual format, we are also opting for short messages, although we are still experimenting and evaluating their use. We have suggestions for podcasts as well, but nothing concrete yet.

There are European elections next year. What do you expect from them in terms of health policies? Will there be specific health issues or challenges that, in your opinion, will set the tone for the next four years?

Florian Tille: The most immediate thing I can think of is the European Health Union (EHU), which is a very broad topic obviously, also pandemic preparedness and response and pharmaceutical pricing policies.  

Dimitra Panteli: In fact, the European Commission has asked the Observatory to support with a public consultation on in which direction the health priorities should be moving forward. During the European Health Forum Gastein (EHFG) and the European Public Health Conference, the Observatory organised sessions about the future health priorities of the EU: such as strengthening and supporting the workforce, addressing the determinants of health, climate change and the sustainability of the health delivery system or the implementation of digital solutions and AI, to name a few. We will have additional webinars in January 2024 on these issues to engage with those who are interested. We will also continue working on topics from the current cycle as well, like the European Health Data Space (EHDS), for example. 

EU projects must take advantage of windows of opportunity, because if they are not aligned with the political agenda, they will have a hard time achieving their objectives or generating impactful messages, no matter how good they are.

And one last thing that I think is important to mention, is that following the COVID-19 pandemic, there might be resistance to continue to focus and prioritise health over everything else when we have other areas that could use that money too. We already saw in this year’s State of the Union speech, is that there was very little discourse about health, so we need to keep making the case for investing in this area

There are several European projects, such as eCAN, that aim to produce general recommendations to help countries implement measures in certain health areas. How do you assess the interaction of these projects with the political spheres? 

Dimitra Panteli: European projects are clearly moving towards a better understanding of the importance of communication and finding a way for their results to somehow land where they’re supposed to.   

They must take advantage of windows of opportunity, because if they are not aligned with the political agenda, they will have a hard time achieving their objectives or generating impactful messages, no matter how good they are. eCAN is an example of how to take advantage of these windows, as it addresses two current key issues: digital health and cancer. 

Florian Tille: Especially when it comes to disseminating and communicating key messages, it is absolutely essential to have a plan for the sustainability of the project and how your messages and findings will contribute to a meaningful change over time, because this is why the project has been commissioned in the first place. You have to think about how to promote the long-term impact of the initiative. 


Logo EUCo-funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or HaDEA.                                                                       Neither  the European Union nor the granting authority can be held responsible for them.

https://ecanja.eu/wp-content/uploads/2023/12/OBS-interview.png 579 1030 eCAN https://ecanja.eu/wp-content/uploads/2023/01/logo_eCAN_shortbanner.svg eCAN2023-12-22 14:10:112024-10-31 13:14:30Dimitra Panteli (OBS): “Understanding how policymakers work is essential to successfully transfer any scientific knowledge”
Page 1 of 41234

Latest news

  • eCAN
    The EU project eCAN JA proposes key recommendations to integrate telemedicine in cancer care2 December 2024 - 09:28

    The European project eCAN Joint Action (JA) has presented a guide of recommendations to integrate telemedicine in European healthcare systems for cancer prevention and care. The presentation has taken place in Brussels last Friday, at the BIP Meeting Center. For two years, the project has explored the role of teleconsultation and telerehabilitation. Its main goal was to identify necessary actions to strengthen the adoption of telemedicine for cancer prevention and care and the use of digital tools for reducing cancer care inequalities across the EU. 

  • Cancer pilots results
    eCAN pilots results point to digital health as an adequate support for cancer patients28 November 2024 - 12:11

    The eCAN pilots focused on remote rehabilitation and virtual psychological support for breast, head & neck, and advanced cancer patients, conclude that the digital health approach has a positive impact on people with cancer and can be useful to improve patient compliance in reporting outcomes and experiences.

  • Artemis Komatina, psychologist involved in the pilots: “In order to promote technology within healthcare settings, we need to start with our healthcare professionals”.21 November 2024 - 08:56

    In the fourth and last episode of this podcast, we’ve talked to four psychologists, one physiotherapist and one primary investigator. They have shared with us their reflection on these clinical trials. After all the work that has been done, now it is time to collect their feedback to start thinking about future actions. Their experience not only guide our next steps, but also help us to understand the main challenges and where our efforts are most needed.

  • Sofia Adão, physiotherapist involved in the pilots: “It’s a good strategy, not so easy to apply because of time-consuming aspects”12 November 2024 - 09:00

    In this third episode, we’ve talk to the healthcare professionals involved about the chances of applying the eCAN experience to the European healthcare ecosystems. What would we need to implement the telemedicine tools that we tested in regional hospitals or cancer centres? They highlight some of the features that must be taken into account to translate these clinical trials into daily common practice within hospitals. We invite you to press play and listen to their reflection on this topic.

  • Constantina Palala, psychologist: “The feedback was positive, and some sessions were actually very good through the online platform”29 October 2024 - 08:53

    In this second episode of the eCAN Bites, we’ve interviewed one of the primary investigators of this resarch, one physiotherapist that worked with breast and head and neck cancer patients, and two clinical psychologists that offered online therapy to cancer patients. We want to share the patients’ experiences through their voices and these four professionals have helped us to build a clearer picture on what patients needed and expected. We invite you to press play and listen to their experiences, you might be surprised by the importance of the very small details when doing a transnational study like this one.

OUR TWITTER

[feed_them_social cpt_id=2451]
Logo EU

Funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or HaDEA. Neither the European Union nor the granting authority can be held responsible for them.

Funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or HaDEA. Neither the European Union nor the granting authority can be held responsible for them.

OUR X

eCAN Joint Action Follow

eCAN aims to provide a framework of recommendations for the integration of telemedicine and teleconsulting in health care systems for cancer prevention and care

ecan_ja
ecan_ja eCAN Joint Action @ecan_ja ·
21 Jan

By working together, we can deliver a more effective response to cancer 🤝

This #WorldCancerDay we will join HaDEA Project Showcase to highlight the importance of fostering synergies among EU projects.
➕ info:
#EU4Health #HealthUnion @EU_HaDEA @EU_Health

Reply on Twitter 1881627809581322522 Retweet on Twitter 1881627809581322522 1 Like on Twitter 1881627809581322522 3 Twitter 1881627809581322522
ecan_ja eCAN Joint Action @ecan_ja ·
14 Jan

More outcomes from our project are coming to light! We are very excited to share a recently published article on the topic of telemedicine in cancer care in five case countries 🇦🇹 🇧🇪🇩🇰🇮🇹🇵🇱
Check it out👉
#EU4Health #HealthEurope @EU_HaDEA @EU_Health

Reply on Twitter 1879113319271002436 Retweet on Twitter 1879113319271002436 1 Like on Twitter 1879113319271002436 6 Twitter 1879113319271002436
ecan_ja eCAN Joint Action @ecan_ja ·
19 Dec

Every great journey has its finale, and eCAN is no exception 👋, but before we close this chapter, we have plenty of exciting insights to share with you all.

All our results are available on our last Newsletter, don't miss it👉 https://ecanja.eu/newsletters/#flipbook-df_5947/1/

#HealthUnion #EU4Health

Reply on Twitter 1869668999971107180 Retweet on Twitter 1869668999971107180 Like on Twitter 1869668999971107180 4 Twitter 1869668999971107180
ecan_ja eCAN Joint Action @ecan_ja ·
12 Dec

🦺 Challenges and risks of #datasecurity and #privacy 🔐 were addressed in parallel with the implementation of our #cancer pilots.

Check out our guidelines and recommendations! 👇

📄 Full report: https://lnkd.in/dCSGTaKg

#HaDEA #HealthUnion #EU4Health

Reply on Twitter 1867148786427978042 Retweet on Twitter 1867148786427978042 Like on Twitter 1867148786427978042 3 Twitter 1867148786427978042
Load More

CONTACT

You can get in touch with us through our contact form, our email or social networks.

In the contact form you can indicate why you are contacting us by choosing one of the issues of the dropdown list.

                        

© Copyright - Ecanja
  • Privacy Policy
Scroll to top

This site uses cookies. By continuing to browse the site, you are agreeing to our use of cookies.

Accept settingsHide notification onlySettings

Cookie and Privacy Settings



How we use cookies

We may request cookies to be set on your device. We use cookies to let us know when you visit our websites, how you interact with us, to enrich your user experience, and to customize your relationship with our website.

Click on the different category headings to find out more. You can also change some of your preferences. Note that blocking some types of cookies may impact your experience on our websites and the services we are able to offer.

Essential Website Cookies

These cookies are strictly necessary to provide you with services available through our website and to use some of its features.

Because these cookies are strictly necessary to deliver the website, refusing them will have impact how our site functions. You always can block or delete cookies by changing your browser settings and force blocking all cookies on this website. But this will always prompt you to accept/refuse cookies when revisiting our site.

We fully respect if you want to refuse cookies but to avoid asking you again and again kindly allow us to store a cookie for that. You are free to opt out any time or opt in for other cookies to get a better experience. If you refuse cookies we will remove all set cookies in our domain.

We provide you with a list of stored cookies on your computer in our domain so you can check what we stored. Due to security reasons we are not able to show or modify cookies from other domains. You can check these in your browser security settings.

Google Analytics Cookies

These cookies collect information that is used either in aggregate form to help us understand how our website is being used or how effective our marketing campaigns are, or to help us customize our website and application for you in order to enhance your experience.

If you do not want that we track your visit to our site you can disable tracking in your browser here:

Other external services

We also use different external services like Google Webfonts, Google Maps, and external Video providers. Since these providers may collect personal data like your IP address we allow you to block them here. Please be aware that this might heavily reduce the functionality and appearance of our site. Changes will take effect once you reload the page.

Google Webfont Settings:

Google Map Settings:

Google reCaptcha Settings:

Vimeo and Youtube video embeds:

Privacy Policy

You can read about our cookies and privacy settings in detail on our Privacy Policy Page.

Privacy Policy
Accept settingsHide notification only