Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease. Since its creation in 2008, Rare Disease Day has played a critical part in building an international rare disease community that is multi-disease, global, and […]

The Shared Services of the Ministry of Health (SPMS) of Portugal will make a presentation titled "Lessons learnt and experiences about the deployment of Big Data solutions in a national context" where eCAN will be featured. The presentation was made in the context of the World Health Organization Regional Office for Europe's Spring School on […]

World Health Day is celebrated every year on 7 April to commemorate the anniversary of the founding of the World Health Organization (WHO) in 1948. Each year for this date, a theme is chosen that highlights an area of priority concern for WHO. In the face of the current pandemic, a polluted planet, and an […]

The Aristotle University of Thessaloniki (AUTH), as WP8 member, will present preliminary results from the Stakeholders Mapping survey and the workshop: "the Patient/Healthcare Professionals (HCPs) Engagement Strategy".

The Aristotle University of Thessaloniki (AUTH), as WP8 member, will explain the importance of getting policymakers involved in a research project such as eCAN. In the same workshop, WP8 will go through the different strategies eCAN partners may use to get policymakers involved.

The Aristotle University of Thessaloniki (AUTH), serving as a member of WP8, will emphasize the significance of involving and raising awareness among European actors and entities regarding the eCAN project. The primary objective of this workshop is to foster discussions and strategic planning on effective methods for disseminating messages and promoting collaboration on a pan-European level.